Thursday, January 28, 2010

Good news

This has been a great week… a really remarkable week. It started off with me getting a MRI on Monday and spending the day with my father.

Then on Wednesday being told that the results from the MRI looked good. The words “looked good” were some of the best words I had heard since this nightmare started. We didn’t know what to expect but just being told the MRI looked good” was awesome.

Then Wednesday was even better… Kim took the day off to go with me to the Dr to get the results… so after taking Cole to school… I got to walk him to class and I never get to do that… Kim and I had breakfast. After that we met my brother at the Dr Where we got the actual results of the MRI. We were told the swelling went down and the pea size tumor stayed the same size… the fact that the tumor stayed the same size is I think a miracle… you have to remember that what I have is an extremely aggressive tumor – for it to not grow is astounding.

Kim and I had lunch to celebrate and did a little shopping … I got the book I have been looking for. I was also talking to a friend about all the time I have during the day and they suggested I find a new hobby… so I decided to take up painting… I know nothing about painting but what the hell let’s see what I can do it will help me pass the time.

Thank you for all the prayers and love you all are an inspiration to me.

Please remember to sign up for the brain cancer walk by going to

http://events.abc2.org/site/TR/Events/General?team_id=1090&pg=team&fr_id=1040

Tuesday, January 19, 2010

5k Brain Cancer Walk

Met with my neurologist on Monday and good news the fact that things have stayed stable is good. The fact that I have been seizure free for some time is good and a great sign of my progress. I have had some weird eye issues lately… mostly while reading. The Dr. tested my eyes and does not think it has anything to do with the tumor… I just need new glasses. It has been a while since I have had my eyes checked so this weekend I’ll get new glasses and see what happens.

I want you all to know that there will be a 5k Brain Cancer Walk Saturday, March 27, 2010 at John Prince Park in Palm Beach County, I am in set up a team “TEAM LEVINE” we will raise money for further research so mark your calendar.

For info or to donate go to

http://events.abc2.org/site/TR/Events/General?team_id=1090&pg=team&fr_id=1040

Tuesday, January 12, 2010

Cancer sucks… but life is good

Today I am feeling good and am staying positive. I am however getting cabin fever. Not being able to work or even get to work is taking a toll on me. Not working and not being able to drive takes its toll on you.

I am glad that I am tolerating all the drugs and have been able to keep the seizures at bay. I just can’t wait until I can get back behind the wheel again, do some work and lead more of a productive life. It’s not the not driving part that is at times the hardest… it’s the loss of independence not the cancer itself. Yes the cancer sucks… I just wish I could drive again. I have to go six months seizure free before I can drive again… then I have to get a car. If you remember my lease was up just as I got sick so I never got a new car. I think when I can drive ill get a used car over a new car. Why spend the money on a new car when I can save some cash by getting a used one and if I do have a seizure I don’t have a new car sitting there that I can’t use.

On a funny note a good friend of mine went to a physic… I know what you’re thinking but have an open mind… I was skeptical too. The physic knew about me being sick without my friend saying a word, and she knew my illness started off violently. She knew about the seizures she knew things that my friends never mentioned. The good news is the physic said that I have a lot of longevity in me but I will be on chemo for a long time. Take what you want from this be skeptical… I don’t care. I believe now… I have to believe.

Friday, January 8, 2010

I have lost 25 pounds

I was recently asked by a friend about exposure to cell phones and the result of tumors along with other electronics I was exposed to while working in TV news this and this is what I told him.

“I have thought of it all. Everything from the cameras sitting just next to where the tumor is… to cell phones and even the live truck… the problem is – there is no solid research to support any of it. I’m joining a brain tumor support group that I hope they will have some of the most recent info and research on the subject.”

The thing is… know one really knows anything yet if there is anything to know. The only thing I can do at this point and wait… wait and see if any proof comes out.”

Again today I am feeling good enjoying the cold weather and getting ready to go for a walk. Did I tell you that since the whole nightmare started I have lost 25 pounds… not the ideal diet but I still had to get new pants and I am going to try to stay in those new pants by walking and keeping my meals smaller.

Thursday, January 7, 2010

Cancer sucks… but life is good

Things are going good for me… yesterday (Wednesday) I had my Avastin which is basically chemo and I came out feeling good… not tired… no nausea… nothing. I feel so good I sometimes can’t believe and and forget I am sick. Craig (my brother) took to for my chemo so we were able to spend the day together… we had a good time, it’s nice to just spend the day with him especially when I am feeling great.

I have a good feeling about my future… my last couple of seizures weren’t as bad as the previous and they have been less intense. I will learn more about my tumor at the end of January when I have my next MRI so keep your fingers crossed and prayers coming. We want that tumor gone or at least shrunk from my last MRI.

I see what’s happening out there in the world and I realize just how lucky I am as bad as it is to have a tumor and cancer and just how uncertain my future is…I realize I am lucky… Kim and Cole are both healthy all my family is healthy... even my father who just had back surgery (he came out great and feeling good). I am a lucky man. Cancer sucks… but life is good. Remember that.

I still often ask myself “why me” and I know there is a reason… just what that reason is I have yet to figure that out.

That’s it for today I want to say thank you for reading the blog and please… please pass it along to others I want as many people to know my story as possible.